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Seeking Adolescents Aged 15 to 19 affected by Neurofibromatosis type 1 (NF1)

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SEEKING ADOLESCENTS Aged 15 to 19 and affected by Neurofibromatosis type 1 (NF1) We are currently seeking Canadian adolescents, aged 15 to 19, affected by NF1 who wish to participate in an online research project on: THE IMPACTS OF NF1 ON THE LIVES OF ADOLESCENTS The objective of this study is to have adolescents suffering from NF1 help us to better understand their needs and concerns involving: 1) the medical aspects of NF1, 2) its impact on their social and private lives and 3) intergenerational dialogue. If you are a Canadian adolescent affected by NF1 and you are between the ages of 15 and 19, you can participate in this study and access an online questionnaire by clicking on one of the following links: French: http://www.consultation.medecinesetcultures.org/nf/ English: http://www.consultation.medecinesetcultures.org/nf/eng THANK YOU IN ADVANCE FOR YOUR MUCH APPRECIATED PARTICIPATION! Chantal Bouffard, Ph.D. Genetics Division, Department of Pediatrics, Faculty of Medicine and Health Sciences, Université de Sherbrooke http://www.medecinesetcultures.org/ This study, initiated by Professor Bouffard and her team, is possible thanks to the support and collaboration of the members of the Association de la Neurofibromatose du Québec.
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C.P. 150, Succ. St-Michel
Montreal, Quebec
Canada, H2A 3L9


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514-385-6702

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The funds collected are used to produce literature that serves to inform people with neurofibromatosis (NF), their families and others interested in this genetic disorder.


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