Pain in NF1 patients
Neurofibromatosis specialists are well aware of the diversity of the disease’s manifestations. However, there is one that often comes up in conversation, but has remained neglected by the community: pain.
Pain in NF1 patients: different mechanisms call for new treatment. (French only)
Download PDFThis scientific section covers a number of important topics and issues. Here are some of the important points covered:
- Introduction
- NF1 is more than tumours: All about painful peripheral sensory neuropathy
- What is pain?
- Location of NF1-specific pain
- What do we know about NF1 pain mechanisms?
- What treatment options are available?
- The psychosocial aspect of NF1
- Some books on mindfulness techniques
About
NF1 patients have neurological disorders, such as sensory loss, sleep difficulties, weakness or tingling, potentially due to neuropathy. In addition to these commonly described symptoms, patients also report their experience of chronic pain, an understudied phenomenon whose prevalence in NF1 patients is precisely unknown.