NF Guide for Parents
When a child is diagnosed with neurofibromatosis, the whole family is affected. This reality can arouse emotions that add to the challenges of daily life.
NF Guide for Parents
Download PDFThis guide covers a number of important topics and issues. Here are the main points:
- The impact of neurofibromatosis on the family
- What is neurofibromatosis type 1?
- Glossary
- Discussions with your paediatrician
- Executive function disorders in people with neurofibromatosis
- Strengthening family relationships (4 parts)
- Lack of social skills in children with NF1
- Forming an educational team: how to ensure continuity between school and home
- Your child’s education rights (2 parts)
- Resilience, transition to adulthood and future success
- Acknowledgements
