Coping with neurofibromatosis – A guide for teenagers

This teen guide aims to explain what is known about neurofibromatosis and what can be done to help people cope.

Coping with neurofibromatosis – A guide for teenagers (French only)

This guide covers a number of important topics and issues. Here are the main points:

What is neurofibromatosis?
How is neurofibromatosis diagnosed?
Diagnostic features of neurofibromatosis
How does NF1 affect the body and what can be done about it?
Aesthetic effects
Pain
Growth and development
Learning disabilities
Is neurofibromatosis a form of cancer?
NF1 medical follow-up
Should I limit my activities because of neurofibromatosis?
The genetics of neurofibromatosis
Confronting neurofibromatosis
What kind of research is being done on neurofibromatosis?
Conclusion