Neurofibromatosis Type 1 (NF1)

Developed in collaboration with neurofibromatosis specialists from the CHUM, this first webinar in our series focuses on neurofibromatosis type 1 (NF1). The webinar aims to make medical information more accessible to people living with NF1 and their loved ones, while helping them better understand the different aspects of the condition and what to monitor over time.
Le phare santé

Webinar 1/3 — NF1

Watch the webinar

Here is an overview of what is covered :

  • Clinical presentation of NF1
  • What is a neurofibroma?
  • Inheritance and mutations
  • Questions addressed :
    • Why do I have NF1?
    • Will all my children have NF1?
    • Will I develop cancer?
    • What is the difference between a benign tumor and cancer?
    • Can NF1 be cured?
    • Can the variability and severity of symptoms be predicted?
    • What can I do to relieve itching caused by cutaneous neurofibromas? Are there any effective products or solutions?
    • What is mosaic NF1 and how does it present?
    • Can I have NF2?
    • Why is regular follow-up important even if I am, or appear to be, in good health despite having NF1?