Key Follow-Up Considerations for Adult Patients with NF1

In this presentation, Dr. Sarah Lapointe, neurologist at the CHUM, outlines the key aspects of follow-up care for adults living with NF1. She discusses the different types of tumors, potential vascular complications, as well as neuropsychiatric manifestations and other health considerations. This presentation aims to provide a better understanding of how the condition evolves in adulthood and how to tailor follow-up care accordingly.
Dre Sarah Lapointe

Conference – Key Follow-Up Considerations for Adult Patients with NF1 (French only)

Watch the conference

Here is an overview of the topics covered in this presentation:

  • Tumors and malignant transformation:
    • Plexiform neurofibroma and MPNST
    • Breast neoplasia
    • Pheochromocytoma
    • Gastrointestinal stromal tumor (GIST)
    • Glial brain tumors
    • Optic pathway glioma
  • Vascular complications:
    • Arterial hypertension
    • Other vasculopathies
  • Cutaneous neurofibromas
  • Vitamin D
  • Neuropsychiatric manifestations
  • Family planning