Key Follow-Up Considerations for Pediatric Patients with NF1
In this presentation, Dr. Alexandrine Larouche, a general pediatrician at the NF1 clinic at CHU Sainte-Justine, outlines the key aspects of pediatric follow-up in neurofibromatosis type 1. She explains how the clinical evaluation of a child with NF1 is carried out, the issues to monitor over time, and the resources available to support families throughout their journey. This presentation aims to provide concrete guidance to help better understand and accompany clinical follow-up.
Conference – Key Follow-Up Considerations for Pediatric Patients with NF1 (French only)
Watch the conferenceHere is an overview of the topics covered in this presentation:
- Organization of the clinic
- Key elements of NF follow-up
- Medical follow-up
- Developmental / school follow-up
- Socio-emotional follow-up and transition
- Suggested children’s books / picture books
- Suggested novels for teenagers
- Transition to adulthood
