We’re here for you.
Every year, the Association de la neurofibromatose du Québec works hard to set up various services for its members, with the aim of offering them comprehensive support and helping them better manage the disease so they can live fulfilling lives..
NF awareness activities
The ANFQ aims to lift the veil of ignorance that surrounds neurofibromatosis by raising awareness and breaking the isolation of sufferers and their families while offering them support and information. That’s why, every year, the association organizes awareness- raising activities for its members.
Family activities
For the ANFQ, strengthening the ties that bind the NF community and giving families affected by neurofibromatosis a little respite are vital. That’s why it organizes family activities for its members, providing the perfect opportunity to meet new people.
Support for sufferers and their families
The ANFQ is committed to listening to its members, to all those affected by neurofibromatosis, and to their immediate families so that they feel supported through the disease. At any time, anyone who feels the need to talk or be listened to can contact the association by email or telephone.
Access to medical documentation
By gathering the most up-to-date information on neurofibromatosis, the ANFQ offers its members relevant documentation to provide them with the best possible tools. Several guides and information kits on NF are available to answer questions before and after diagnosis.
Access to webinars with NF experts
Throughout the year, the ANFQ offers its members the opportunity to attend webinars featuring various neurofibromatosis specialists. NF experts provide relevant information on the disease during these online conferences and answer participants’ questions.
Financial assistance program to support families
A financial assistance program has been offered to ANFQ members who are residents of Quebec since March 2024. The purpose of this program is to support people with NF for whom a neuropsychological evaluation would be recommended, in addition to supporting the implementation of post-diagnostic tools in the context of neuropsychological disorders. For full details, please write to: [email protected]
Annual General Meeting
Once a year, the ANFQ brings all its members together so that the President and General Management can provide them with a complete picture of the association. In addition, a number of important decisions are taken or approved at this meeting, such as: approval of the financial statements, election of directors and votes on other matters duly brought before the meeting.