Consult a specialist

When you or one of your children is diagnosed with NF, it's very important to arrange for regular medical follow-up with an NF specialist. This will help detect any complications as early as possible. Regardless of your age, there are now a number of specialized clinics across Québec that care for adult and pediatric NF patients. Rest assured that health professionals will also support family members in coping with this little-known disease.

Specialized clinics

Sainte-Justine University Hospital Center

The neurofibromatosis clinic at CHU Sainte-Justine has become one of the largest specialized clinics in North America for children with NF.

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University of Montreal Hospital Center (CHUM)

The Centre d’expertise en neurofibromatose du CHUM is an interdisciplinary clinic offering specialized care for adult patients with neurofibromatosis.

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McGill University Health Centre (MUHC)/Montréal Children’s Hospital

The McGill University Health Centre (MUHC) also includes the Montreal Children’s Hospital (MCH) and the Montreal Neurological Institute (MNI).

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Sherbrooke University Hospital (CHUS)

The CHUS Neurofibromatosis Clinic offers specialized care for children and adolescents with NF1.

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CHU de Québec – Université Laval/Centre mère-enfant Soleil

The neurocutaneous disease clinic at CHUL’s Centre mère-enfant Soleil (CMES) came into being in 2022, following several months of hard work.

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CHU de Québec – Université Laval/Pavillon Enfant-Jésus

The Neurogenetic Diseases Clinic at CHU de Québec – Université Laval has been headed by neurologist Dr Nicolas Dupré since 2008.

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