Neurofibromatosis is a genetic disorder which affects the skin and the nervous and skeletal systems. It may be inherited from either parent in 50% of cases or result from a spontaneous genetic mutation.

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Our mission

We are pleased to welcome you to share in the life of our organization whose mission is to support the cause of neurofibromatosis.

   A few statistics


In 50% of cases, the neurofibromatosis may have been inherited.

 10 000

There are 10,000 persons affected in Canada and 100,000 in the United States.

 3 forms

There are three different forms of NF. The most common is NF1, also known as von Recklinghausen neurofibromatosis.


Together we will fight NF out of the shadow!




9:30 à 16h00
Pavillon Édouard-Asselin, Montréal

Journée Conférence sur la Neurofibromatose

Venez en apprendre plus sur la NF avec différentes conférences données par nos chercheurs!

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9h30 to 5pm
Ferme Brio, Racine, Estrie

A day with horses for adults with NF

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9h30 to 5pm
Ferme Brio, Racine, Estrie

Activity with horses for kids with NF and their parents

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Become a member

Becoming a member is free! Active members have the right to vote at general meetings and are invited to attend get-togethers and conferences.

Become a member