Let’s make the future brighter together

The Association de la neurofibromatose du Québec (ANFQ) is a non-profit organization founded in 1989. Since the very beginning, we have offered support to people with neurofibromatosis and their families. We aim to unite, inform and engage with an empowered and dynamic NF community, giving them access to the services they need to improve their conditions and quality of life. Leadership, collaboration, courage and empathy are at the heart of our values. Together, let’s put an end to NF!

Personnes prenant la pose

Visitor profile

Our objectives

Bring the NF community together

Bringing the NF community together to break the isolation and contribute to the well-being of the most vulnerable people affected by the disease.

Promote interests

Ensure fast access to diagnosis and reassuring, empowering care throughout Québec for all people with NF.

Encourage research

Animate and encourage a medical and scientific community that is passionate about NF.

Simplify access to pediatric treatments

Facilitate access to currently available pediatric treatments for children with NF.

Cultivate academic success

Develop services to help children aged 5 to 18 stay in school and succeed, since NF often leads to learning disabilities.

Your guide to a better life

ANFQ has been involved in the fight against NF for over 30 years.

More about the association →
We offer our members a growing range of services to help them live fulfilling lives despite their illness.

Learn more about our services →
The ANFQ gathers as much up-to-date information as possible on NF and shares it in a form that is accessible and useful to all.

Available resources →

Join our community

The ANFQ is a dynamic, rallying community that implements motivating, hope-filled projects for people with NF and their families. By becoming a member of our extended family, you’ll connect with wonderful people, help bring about change with other association members, demonstrate your commitment to the NF community and contribute to our mission!

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100% of your donations go towards achieving our mission.

How to get involved →

Upcoming events

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symposium NF et STB, CHU STE-JUSTINE

16

Oct

Canadian symposium on NF1 and TSC

October 16 and 17, 2025

CHU STE-JUSTINE

I want to register →
Stay tuned for the details