Neurofibromatosis is a genetic disorder which affects the skin and the nervous and skeletal systems. It may be inherited from either parent in 50% of cases or result from a spontaneous genetic mutation.
Our mission
We are pleased to welcome you to share in the life of our organization whose mission is to support the cause of neurofibromatosis.
A few statistics
50%
In 50% of cases, the neurofibromatosis may have been inherited.
10 000
There are 10,000 persons affected in Canada and 100,000 in the United States.
3 forms
There are three different forms of NF. The most common is NF1, also known as von Recklinghausen neurofibromatosis.
Date de début
02November 2019
9:30 à 16h00
Pavillon Édouard-Asselin, Montréal
Journée Conférence sur la Neurofibromatose
Venez en apprendre plus sur la NF avec différentes conférences données par nos chercheurs!
Pour vous inscrireDate de début
05October 2019
9h30 to 5pm
Ferme Brio, Racine, Estrie
A day with horses for adults with NF
SubscribeDate de début
14September 2019
9h30 to 5pm
Ferme Brio, Racine, Estrie
Activity with horses for kids with NF and their parents
SubscribeBecome a member
Becoming a member is free! Active members have the right to vote at general meetings and are invited to attend get-togethers and conferences.
Les nouvelles

La neurofibromatose et la Neuropsychologie de l’enfant tiré du livre de Francine Lussier et Janine Flessas
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L’entraide NF 2016
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Guide sur la NF à l’intention des parents
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Guide NF pour adulte
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La neurofibromatose de type 2 : Renseignements pour les patients et leur famille
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