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Neurofibromatosis is a genetic disorder which affects the skin and the nervous and skeletal systems. It may be inherited from either parent in 50% of cases or result from a spontaneous genetic mutation.

Our mission

We are pleased to welcome you to share in the life of our organization whose mission is to support the cause of neurofibromatosis.

A few statistics

50%

In 50% of cases, the neurofibromatosis may have been inherited.

10 000

There are 10,000 persons affected in Canada and 100,000 in the United States.

3 forms

There are three different forms of NF. The most common is NF1, also known as von Recklinghausen neurofibromatosis.

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Together we will fight NF out of the shadow!

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02

November 2019

9:30 à 16h00
Pavillon Édouard-Asselin, Montréal

Journée Conférence sur la Neurofibromatose

Venez en apprendre plus sur la NF avec différentes conférences données par nos chercheurs!

Pour vous inscrire
05

October 2019

9h30 to 5pm
Ferme Brio, Racine, Estrie

A day with horses for adults with NF

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14

September 2019

9h30 to 5pm
Ferme Brio, Racine, Estrie

Activity with horses for kids with NF and their parents

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Become a member

Becoming a member is free! Active members have the right to vote at general meetings and are invited to attend get-togethers and conferences.

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Les nouvelles

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La neurofibromatose et la Neuropsychologie de l’enfant tiré du livre de Francine Lussier et Janine Flessas

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L’entraide NF 2016

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Guide sur la NF à l’intention des parents

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Guide NF pour adulte

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La neurofibromatose de type 2 : Renseignements pour les patients et leur famille

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L’entraide NF 2001

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