Neurofibromatosis is a genetic disorder which affects the skin and the nervous and skeletal systems. It may be inherited from either parent in 50% of cases or result from a spontaneous genetic mutation.

Our mission

We are pleased to welcome you to share in the life of our organization whose mission is to support the cause of neurofibromatosis.

A few statistics

50%

In 50% of cases, the neurofibromatosis may have been inherited.

10 000

There are 10,000 persons affected in Canada and 100,000 in the United States.

3 forms

There are three different forms of NF. The most common is NF1, also known as von Recklinghausen neurofibromatosis.

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Together we will fight NF out of the shadow!

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02

November 2019

9:30 à 16h00
Pavillon Édouard-Asselin, Montréal

Journée Conférence sur la Neurofibromatose

Venez en apprendre plus sur la NF avec différentes conférences données par nos chercheurs!

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05

October 2019

9h30 to 5pm
Ferme Brio, Racine, Estrie

A day with horses for adults with NF

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14

September 2019

9h30 to 5pm
Ferme Brio, Racine, Estrie

Activity with horses for kids with NF and their parents

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See all our events

Become a member

Becoming a member is free! Active members have the right to vote at general meetings and are invited to attend get-togethers and conferences.

Les nouvelles

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La neurofibromatose et la Neuropsychologie de l’enfant tiré du livre de Francine Lussier et Janine Flessas

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L’entraide NF 2016

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Guide sur la NF à l’intention des parents

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Guide NF pour adulte

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La neurofibromatose de type 2 : Renseignements pour les patients et leur famille

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L’entraide NF 2001

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Voir toutes les nouvelles
Address

C.P. 150, Succ. St-Michel
Montreal, Quebec
Canada, H2A 3L9


Phone

514-385-6702

Email

[email protected]

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The funds collected are used to produce literature that serves to inform people with neurofibromatosis (NF), their families and others interested in this genetic disorder.


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